The revised fundamentals of caregiving : a novel
(2013)

Fiction

eBook

Provider: hoopla

Details

PUBLISHED
[United States] : Algonquin Books, 2013
Made available through hoopla
DESCRIPTION

1 online resource

ISBN/ISSN
9781616203177 MWT15570344, 161620317X 15570344
LANGUAGE
English
NOTES

In The Revised Fundamentals of Caregiving (releasing June 24, 2016 as a Netflix Original Film titled The Fundamentals of Caring, starring Paul Rudd and Selena Gomez), Jonathan Evison, author of the new novel This Is Your Life, Harriet Chance! and the New York Times bestseller West of Here, has crafted a novel of the heart, a story of unlikely heroes in a grand American landscape. For Ben Benjamin, all has been lost--his wife, his family, his home, his livelihood. Hoping to find a new direction, he enrolls in a night class called The Fundamentals of Caregiving, where he will learn to take care of people with disabilities. He is instructed about professionalism, about how to keep an emotional distance between client and provider, and about the art of inserting catheters while avoiding liability. But when Ben is assigned his first client--a tyrannical nineteen-year-old boy named Trevor, who is in the advanced stages of Duchenne muscular dystrophy--he soon discovers that the endless service checklists have done nothing to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated teenager who has an ax to grind with the whole world. Over time, the relationship between Ben and Trev, which had begun with mutual misgivings, evolves into a close friendship, and the traditional boundaries between patient and caregiver begin to blur. The bond between them strengthens as they embark on a road trip to visit Trev's ailing father--a journey rerouted by a series of bizarre roadside attractions that propel them into an impulsive adventure disrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. By the end of that journey, Trev has had his first taste of love, and Ben has found a new reason to love life. Bursting with energy and filled with moments of absolute beauty, this big-hearted and inspired novel ponders life's terrible surprises as well as what it takes to truly care for another human being. Jonathan Evison is the author of the novels All About Lulu, West of Here, The Revised Fundamentals of Caregiving, This Is Your Life, Harriet Chance!, Lawn Boy, and Legends of the North Cascades. He lives with his wife and family in Washington State. hooked on mnemonics I was broke when duty called me to minister to those less fortunate than myself, so maybe I'm no Florence Nightingale. And maybe in light of all that happened with Piper and Jodi, I'm not qualified to care for anybody. The fact is, at thirty-nine, with a gap in my employment history spanning the better part of the technological revolution, I'm not qualified to do much anymore. But don't get the idea that just anyone can be a caregiver. It takes patience, fortitude, a background check. Not to mention licensing and a mandatory curriculum of continuing education, as evidenced by my certificates in Special Needs in Dementia 1, Positive Crisis Management, and Strategies in Nonverbal Communication. The bulk of what I learned about being a licensed caregiver, I learned from the Fundamentals of Caregiving, a twenty-eight-hour night course I attended along with fourteen middle-aged women at the Abundant Life Foursquare Church right behind the Howard Johnson in Bremerton. Consuming liberal quantities of instant coffee, I learned how to insert catheters and avoid liability. I learned about professionalism. I learned how to erect and maintain certain boundaries, to keep a certain physical and emotional distance between the client and myself in order to avoid burnout. I learned that caregiving is just a job, a series of tasks I'm paid to perform, as outlined in the client's service plan, a binding care contract addressing everything from dietary constraints, to med schedules, to toiletry preferences. Sometimes, that's a lot to remember. Conveniently, the Department of Social and Human Services has devised dozens of helpful mnemonics to

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