A face for Picasso : coming of age with Crouzon syndrome
(2021)

Nonfiction

eAudiobook

Provider: hoopla

Details

PUBLISHED
[United States] : Recorded Books, Inc., 2021
Made available through hoopla
EDITION
Unabridged
DESCRIPTION

1 online resource (1 audio file (8hr., 08 min.)) : digital

ISBN/ISSN
9781705040447 MWT14348017, 1705040446 14348017
LANGUAGE
English
NOTES

Read by Ariel Henley

I am ugly. There's a mathematical equation to prove it. At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again

Mode of access: World Wide Web

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